The uplifting story of a mother’s fight to protect her unborn daughter from the deadly effects of cystic fibrosis. Stephanie embarks on a race against time to secure a pioneering new treatment during pregnancy. But will it work – and could this groundbreaking approach help transform the future of CF forever?
When Stephanie Marquart learns during pregnancy that her daughter Hazel has the deadly genetic disease cystic fibrosis (CF), she is devastated. Determined to do everything to protect her child’s future, Steph embarks on a race against time to get hold of a groundbreaking new CF drug that could help her baby in the womb.
But the treatment has not been formally approved for mothers who do not have CF themselves, or for children under 2, so Steph must fight for access. She becomes a fierce advocate for her unborn child, as she faces reluctant doctors, ethical questions and a battle with insurers.
Steph’s deeply personal story is told alongside insights from leading CF clinician Jennifer L. Taylor, who is researching the safety and efficacy of prenatal treatment. At a time when genetic testing for CF is becoming available through a simple blood test as early as ten weeks into pregnancy, this timely film explores this rapidly evolving field of medicine and the hope that future generations, if treated early enough, might never experience the effects of cystic fibrosis at all.